Mom and I were snuggling together.
MOM: is that your tongue?
Me: no that is my lump.
Mom: umm, Morgan, can you come look at this?
Daddy: ( on the phone with my dentist) ( hushed) hi, we’re not sure if we should be calling you or Joanna’s pediatrician. We just found a lump in her cheek and think it should be checked out… Oh, that’s great! We’ll head your way right now, see you in less than 10 minutes.
Daddy: ok lets go!
I went to the dentist and he checked it out and said that the parotid gland was blocked. So, I should suck on sour candies and do heat compresses and salt water rinses. I was pretty excited about the candy. If that didn’t work he’d refer me to an oral surgeon.
So, I went to my pediatrician and he referred me to an ENT. The ENT ordered an MRI. When we met after the MRI he described the removal surgery to us. A friend who is a nurse at OU helped us get in to meet the big cheese! I met my surgeon at the Stephenson Cancer Center instead of OU Children’s because of his schedule. He ordered a biopsy -he said that would help him know what to do next. Once the biopsy results were in, he sent me to another doctor at the Jimmy Everest Center for Cancer at OU Children’s.
I met the new doctor yesterday. I really liked her and her staff. She told me I have cancer. I got labs done for the first time ever, her primary nurse, Nathan did a great job! One of the good things about Children’s Hospital is that there are Child Life Specialists, and their job is to comfort you and teach you about what’s going to happen. I had a great one of those! She let me watch a show while I was getting my labs done and she had a disco ball light up toy that we looked at together, and she gave me a squeezy orbeez ball that I got to keep and play with. It hasn’t popped yet.
On Monday I’m going to get my PET/CT Scan. Then I’ll get a bone marrow biopsy and port placed on another day and probably also get my first chemotherapy treatment that day.
My doctor told me to remember 2 things:
1. This is a very curable cancer. 2. I’ll be with you every step of the way.Dr. McNall