Hello everyone! Joanna agreed I could do a guest post tonight 🙂 We’re thankful to share that her tumor removal surgery yesterday went great! Having a great team was such a blessing. Her surgeon has lots of experience: with cancer, with kids, with ENT things, and probably with tons of other things that I have… Continue reading update from mom
In the hospital
Here I am in, in the hospital waiting for my discharge. I am doing my spirograph that is really fun!
Treats!
Sharing is fun! We brought some popcorn to share with all the nurses today. It’s been fun to see their excited reactions when we offer them a bag.
Surgery Eve
today I got my COVID 19 test , my nurse friend Erin showed me how to put in a IV into a rubbery plastic straw. It was really cool. When I got my COVID 19 test I got to keep a clean version of one of the swabs that they put in your nose to… Continue reading Surgery Eve
pay the valet
One way to help us is to drop a buck or 2 or 3 into mom’s paypal account. I was super excited to have an appointment today with a Child Life Specialist to get a pre-surgery tour so I could see what my overnight room will look like on Friday. We left knowing that we’d… Continue reading pay the valet
Plans
Friday is surgery day! About two weeks from surgery I am going to get chemo!
Tests
First there’s the COVID next cancer at the same time! So,I’m getting tests for before any anesthesia. From a kid’s perspective it is really uncomfortable. But, if we wear our masks we can stop COVID together. So, wear your masks!
Rhabdomyosarcoma
This big word is the official name of my cheek muscle cancer (which is in my lump). It comes from dumb cells that only know how to eat and multiply. Healthy cells learn their jobs. These dumb cells don’t learn their jobs. They only know how to multiply and keep doing that until they make… Continue reading Rhabdomyosarcoma
Home!
It’s good to be home. I’m having fun with my new duck Aflac. Both procedures went well. I’m SO thankful for the team at OU Children’s hospital taking care of me.
My mask is ready. I have finished the sniff test and picked chocolate, and I got to put lots of stickers on.
I’m almost ready to go back for port placement and bone marrow biopsy.