First there’s the COVID next cancer at the same time! So,I’m getting tests for before any anesthesia. From a kid’s perspective it is really uncomfortable. But, if we wear our masks we can stop COVID together. So, wear your masks!
Category: Updates
Rhabdomyosarcoma
This big word is the official name of my cheek muscle cancer (which is in my lump). It comes from dumb cells that only know how to eat and multiply. Healthy cells learn their jobs. These dumb cells don’t learn their jobs. They only know how to multiply and keep doing that until they make… Continue reading Rhabdomyosarcoma
Home!
It’s good to be home. I’m having fun with my new duck Aflac. Both procedures went well. I’m SO thankful for the team at OU Children’s hospital taking care of me.
My mask is ready. I have finished the sniff test and picked chocolate, and I got to put lots of stickers on.
I’m almost ready to go back for port placement and bone marrow biopsy.
Biopsy
When I got into the building to get my biopsy we went into the waiting room and stayed there watching Princess Sofia the first. Then we were called in and a person got my vitals and took us to my room. Then a lot of people came in. One of them was a Child Life… Continue reading Biopsy
pet cat
aka PET/CT scan The machine will look like a donut. Mine has been ordered for Monday. I get to go to the adult side of the hospital for the scan because there is only one machine at the hospital that does this scan, and it’s over there. I need the pet cat scan to see… Continue reading pet cat
Child life specialist
A couple cool things about a child life specialist is : You can watch something on their phone (this really helped when I was getting blood drawn for my first labs) You can listen to music on their phone They can attach a light disco ball to their phone and make disco lights appear on… Continue reading Child life specialist
Sam
It was so cool to meet Sam the doll! He has a port. I got to stick the needle like the nurse will. The port is a white semi circle under the skin. And, that is how the chemotherapy will get into me, through a port like Sam has. One cool thing about Sam was… Continue reading Sam
One day…
Every good story has a background. This is Joanna’s story of The Lump.